Why do I Write this Blog?

I thought this would be a great way to conclude a 3 post cycle centered around Thanks and Giving before we head into the home stretch of the end of 2015 and the end of my first year of blogging… And since I have written a few posts abnormally close together, I promise only a few hundred words this time, just slightly longer than an @CurrentIncurSci tweet 🙂 (although I admit I am a more successful blogger than tweeter!)

Why do I write this blog?  At a base level, I use it to update my personal status for my family & ever growing circle of friends now the world over (I just checked – I now have readership in 104 countries!).  Although I mostly stay positive (not for show, it is in my Root Directory), I sometimes use it as a means of catharsis when I have to share any not so good news about myself or others. The ultimate group therapy! ha

I’ve explained on the Home Page and elsewhere that a major broader goal is for this blog to bridge the Stage IV cancer patent and medical scientist worlds to inspire each of them. To share each others’ viewpoints and information on the joint problem of Cancer that they are both fighting from different directions – but unfortunately usually without talking to each other as much as they should.

A major fuel which keeps me working so hard on all my numerous writing & advocacy projects, including this blog, is the feedback I get.  Feedback of thanks for information, thanks for inspiration, thanks for Hope.  That is my favorite word: Hope.

I love getting all of that feedback.  Letters, emails, family pictures, blog comments, Facebook texts & comments, twitter messages & followers, blog subscribers, the occasional home made & regional physical gifts.  Since I started publishing in China (with the help of an entire army of translators shown below!), I receive numerous WeChat messages  and comments written in Chinese too – I truly do appreciate all of them!

Tom's Group-7351_all

I know I have touched someone on a very personal & needed level whenever I get even the smallest bit of feedback. It energizes me in both my fight for others & in my fight against my own cancer!.

I received something very special in the mail today.  I usually can’t share notes of thanks I get, no matter how touching they are, because they are too personal in nature to reprint.  This card I received today was beautiful in both its simplicity and its heartfelt hand written message from a child.  It was also written in such a way that I can share it without breaking confidence.

Why Do I Write This Blog?

The child’s handwritten message, phonetic misspelling included, says it all: “Your story is a insparation to all kids who have lost hope.”

2015-12_Blog Kid Thank You Card-Side1 2015-12_Blog Kid Thank You Card-Side2

Specific advocacy and blog goals aside, the card I received today from a kid I have never physically met before?  That sums up perfectly why I write this blog. To inspire those, kids and otherwise, who have lost Hope.

To Life!

13 Comments on “Why do I Write this Blog?

  1. Such a sweet card! Thanks for sharing it! My Husband and I are so thankful for the HOPE that comes from reading your blog! Wishing you and your family continued joy, peace, and HOPE, at this magical and holy time of the year!

    Liked by 1 person

    • I likewise have the same wished for you, especially during this time of year. I am glad you get something helpful and meaningful from my blog. Thank you for reading and your nice comment!

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  2. Your blog *does * inspire HOPE.

    I’m running out of options for my Stage IV KRAS-Mutant/MSS colon cancer (wouldn’t have known about MSI/MSS without your blog), and though I feel sadness, there are also moments of soaring joy because people like you are working so incredibly hard to find those magic bullets we need.

    May God bless you and your family richly in this season of Advent, the season of watching and waiting.

    Liked by 1 person

    • Thank you Sarah – I’m not sure if you saw my posts on FB or Twitter yesterday (I always use “public setting” there for CRC posts) but there was a huge CRC-immunotherapy expert roundtable convened yesterday to bring together many of the greatest scientists in those fields to discuss data and ideas for MSS patients like you and I. Scientists are working very hard on MSS-CRC! I will do a full blog on the meeting and once published any MSS signs of success ASAP on both my Fight CRC science column and on this blog!

      The immunotherapy wave continues to rise, hold on!

      I hope you have a very nice Advent and afterwords a wonderful Christmas,
      Tom

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  3. This is a very heart touching blog, thank you for sharing it, and letting your readers reflect on the beautiful simplicity of the message, HOPE. Blessings to you and your family.

    Liked by 1 person

    • Thank you Nancy – I am glad it touched you in a similar way that it touched me. Blessings to you & your family as well. -Tom

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  4. Thank you so much Tom for sharing your special card. As a teacher who had to leave teaching way to early, I know how special it is to connect with a child. What a very special gift you have. You are a wonderful communicator and a super advocate. Hope is the thing with feathers…………

    Liked by 1 person

    • You are so right Mary, being a Father myself, it was especially meaningful to find out that I had made that connection point with a child… Thank you for your compliments and your readership, I am glad I have connected with you as well! -Tom

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  5. I’d be six months behind what I’ve learned from you, Tom, if I hadn’t somehow, and I don’t remember how now, found you. So mich appreciation and love, Tom, from me to yoou….have a great Advent!

    Liked by 1 person

  6. Tom, if hadn’t inadvertently stumbled across your blog, I’d be half blind still. What you do is so very appreciated. My admiration and brotherly love to you during this Advent.

    To Life!

    Liked by 1 person

    • Thanks for both comments Nat – likewise I am glad you found inspiration & information – and that we have been able to meet & become friends this year! To Life Brother!

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  7. Dear Tom, I stumbled upon your blog by chance and immediately saw several parallels, which compelled me to write to you. I’ve also worked in pharma for over 20 years (oncology and other areas) and got catapulted out of my routine by a Stage IV cancer diagnosis. I had three young kids and was 45. That was back in 2008. Though my diagnosis was gallbladder cancer, I was on the same protocols as you: FOLFIRI+Avastin, FOLFOX, and a whole pharmacopeia of others (including biologics), two radical surgeries, plus RFA and two types of radiation. You’re giving others so much optimism and hope, I just thought you may want to know that it’s definitely possible to succeed. In my case, after fighting seven relapses, I’ve been clear for 3 years now. I know a few others with similar outcomes. So keep going! All the best. Ella

    Liked by 1 person

    • Dear Ella, Thank you so much for your note. We indeed share an incredible number of parallels. Congratulations on your 3 years of all clear, 8 years out from your diagnosis! You went through a lot but your story is certainly inspirational to me and I am sure also now many other readers of my blog! I’m glad you stumbled on my site and that my writing connected with you – hopefully it continues to do so. I plan to keep going! 🙂 Take care, Tom

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