AdventuresInLivingTerminallyOptimistic

This week is one of those weeks where a bunch of important things are happening, across a wide range of my life!  I was trying to think of how to organize...

All I could think to myself was “WOW”!  Similar to my Charlie Rose Show experience last March, this email came out of the blue as well… I received an email from...

Not with a bang but with a whimper… that is how my cancerversary – my fifth cancerversary – snuck up on me this year. In previous years, I started thinking about...

The title says it all, although it should also be noted that this approval also covers other/all MSI-high cancers, not just MSI-HIGH CRC!.  Links below.  The first time a checkpoint immunotherpy (pembrolizumab (Keytruda))...

What a week I had last week!  Taken overall it was a GREAT week.  It was extremely hectic and not without some blemishes towards the end, but overall… it was a...

>1,000 Hits… my mind was blown away.  My cancer had returned and I was now diagnosed recurrent Stage IV.  I knew at that moment that standard of care therapies would only...

“Ironic” – as shown in the above pictured definition of “Ironic” from the Urban Dictionary – is a word that is often misused in contemporary life but when it comes to...

Cover photo by Ariana Drehsler for STAT.  Source: STAT News – here. As you know I work with MANY different CRC organizations – The WunderGlo Foundation, Fight Colorectal Cancer, COLONTOWN, The...

What makes a hero? There is some debate in the cancer community… is it right to refer to cancer patients/survivors as heroes? A burning building/emergency responder argument is sometimes used.  If...

March 1st is the beginning of Colorectal Cancer Awareness month. I chose to commemorate it in this way – in the hopes that these pictures will bring awareness of the EXPLOSION...

SCHEDULED FOR FRIDAY (12/23) – NBC NATIONAL NIGHTLY NEWS with Lester Holt!  NBC Nightly News recently interviewed both I and a patient/caregiver couple helped by the COLONTOWN CLINIC, a project supported by...

Hope – it is such a simple, yet complex word. A short word that is easy to explain on the base-level but it can be incredibly complex to comprehend all the...

I had my post-summer-chemo-break CT-scan on Wednesday.  Regrets & worry started to try to enter my consciousness.  They were unwelcome invaders and to be honest, rarely seen or felt in my...

Some people have the mindset that once you hit age 40, you are pretty set in your ways.  They think: You know yourself, you know your likes and you know your...

Last year I was lucky enough to be chosen as a Featured Survivor in the annual Colondar 2.0 magazine  that The Colon Club produces each year. As a part of being chosen,...

When I first started this blog, I made a very conscious decision: I wanted to “be that Google Hit” found when someone first diagnosed with CRC is scrambling to search for...

A great aspect of my current life is that I get to meet some incredible people doing incredible things.  Doing things that they never would have done without cancer entering their...

My alarm went off at 3:30 this morning.  I was not expecting what ended up being my first thoughts.  They weren’t of me running the run leg of this morning’s Spring...

Surfing the AACR Waves of Science What a day.  I just woke up from a drug-induced nap that wasn’t particularly long but it was deep.  For the second FOLFIRI chemo infusion...

It’s hard to believe that it has already been almost 12 months since I last ran a UCSD-Moores Cancer Center Team Triathlon, which I wrote about last year in my post...

You know those moments in life when something so unexpected, so exhilarating & so meaningful (all wrapped up in one) happens – that each time you think of it you get...

In conjunction with the start of Colorectal Cancer (CRC) awareness month, I’m excited to announce that the 2016 Colondar 2.0 annual resource magazine was released today! I LOVE the page from...

My friend Lindsey Motley died of colorectal cancer (CRC) today.  She was 29 years old. She was very special in many ways to an incredibly large number of people – including...

La version en Español es accesible pasando el texto original en Inglés The title of this post is “The Faces of Successful Colorectal Cancer Immunotherpies: Vol. 1” in Spanish.  To explain...

“Each patient’s cancer is unique and personalized – why shouldn’t their treatment be too?” My latest The Currently Incurable Scientist column for Fight Colorectal Cancer has published and it ended with the...

  You have probably thought to yourself “Wow, I’m having a bad day”  Or maybe “Whew, that was close”  Or perhaps even “I’m not sure if I’m going to make it…”...

Everyone who reads this blog knows how much running is tied into my cancer story.  From its very beginnings as initially a fast-paced walk during my Stage 3 NED (No Evidence...

I know I had promised that my previous post “WORLD IN MY EYES (FAVORITE POSTS OF 2015)” would be the last of 2015 but… it is hard to keep a writer...

As my most recent Currently Incurable Scientist column began: On December 2, 2015 a remarkable meeting took place. Jointly organized by Fight Colorectal Cancer (Fight CRC) and the leading immuno-oncology organization...

I thought this would be a great way to conclude a 3 post cycle centered around Thanks and Giving before we head into the home stretch of the end of 2015 and the...

1 in 20 Americans will hear the words “you have colorectal cancer (CRC)” this year. In America alone, it will cause 50,000 deaths in 2015. Currently there is no cure for...

As I announced in my most recent medical update post “It’s a Marathon Not a Sprint”, this week I started the chemotherapy cocktail FOLFIRI  + the angiogenesis inhibitor Avastin (bevacizumab). I...

An Unexpected Conversation Over Breakfast August 26, 2015.  It was early in the morning California time – late afternoon in Russia.  I was going through my overnight messages in the large...

I wanted to expand the normal scope of my personal blog in today’s post. Not just for the sake of expansion but importantly because I believe strongly in today’s topic!  After...

THANK YOU to all the donors to my runathon first announced back in July!  114 Miles later it raised a whopping $4766 for the national colorectal cancer patient advocacy group The...

The title to this post is “Adventures in Living Terminally Optimistic” in Chinese. It should also have a subtitle “First, an Introduction… Part 2”. Aka “Oops”. Seeing my blog title in...

Some posts are closer to my heart than others.  This one is very close – it shows what made me the patient-scientist-advocate I am today… and it comes down to Mom....

Although our health system is far from perfect, we often forget there are BILLIONS of people in the world without basic access to the latest oncology news and knowledge. With >50...

Back on June 4th I celebrated my 3rd Cancerversary, based upon when I was first diagnosed Stage IIIC CRC in 2012.  As someone who is recurrent Stage IV, technically I have...