AdventuresInLivingTerminallyOptimistic

You don’t know how much you will miss something until it is taken away from you.  Two weeks ago something was taken away from me: my ability to walk without assistance....

This past week we welcomed a new member to the family – Blink! Like many good things in life, he chanced into our life without much warning.  I went out to...

The title says it all, although it should also be noted that this approval also covers other/all MSI-high cancers, not just MSI-HIGH CRC!.  Links below.  The first time a checkpoint immunotherpy (pembrolizumab (Keytruda))...

There is something deeply visceral about your brain… It is the center of thought… It is the center of your being… it is the center of who you are… All of...

What makes a hero? There is some debate in the cancer community… is it right to refer to cancer patients/survivors as heroes? A burning building/emergency responder argument is sometimes used.  If...

March 1st is the beginning of Colorectal Cancer Awareness month. I chose to commemorate it in this way – in the hopes that these pictures will bring awareness of the EXPLOSION...

What invigorates me to fight the way I do?  Well beyond basic self-preservation for both me and for my family – it is the sheer amount of needless loss I see...

This is a blog post I had been hoping to write for a long time! The first published (today in the New England Journal of Medicine) “clinically disease free” success achieved...

As long time readers of my blog know – I have been in a quandary since I was diagnosed with (presumably cured) Stage 1 melanoma in January 2015.  That diagnosis, even...

Hope – it is such a simple, yet complex word. A short word that is easy to explain on the base-level but it can be incredibly complex to comprehend all the...

I had my post-summer-chemo-break CT-scan on Wednesday.  Regrets & worry started to try to enter my consciousness.  They were unwelcome invaders and to be honest, rarely seen or felt in my...

Friends. Family. Brothers. Sisters. Those words get used a lot in my current Stage IV life and they’re not necessarily referring to the people you would expect.  They’re referring to fellow...

Last year I was lucky enough to be chosen as a Featured Survivor in the annual Colondar 2.0 magazine  that The Colon Club produces each year. As a part of being chosen,...

When I first started this blog, I made a very conscious decision: I wanted to “be that Google Hit” found when someone first diagnosed with CRC is scrambling to search for...

My alarm went off at 3:30 this morning.  I was not expecting what ended up being my first thoughts.  They weren’t of me running the run leg of this morning’s Spring...

You know those moments in life when something so unexpected, so exhilarating & so meaningful (all wrapped up in one) happens – that each time you think of it you get...

In conjunction with the start of Colorectal Cancer (CRC) awareness month, I’m excited to announce that the 2016 Colondar 2.0 annual resource magazine was released today! I LOVE the page from...

My friend Lindsey Motley died of colorectal cancer (CRC) today.  She was 29 years old. She was very special in many ways to an incredibly large number of people – including...

La version en Español es accesible pasando el texto original en Inglés The title of this post is “The Faces of Successful Colorectal Cancer Immunotherpies: Vol. 1” in Spanish.  To explain...

I know I had promised that my previous post “WORLD IN MY EYES (FAVORITE POSTS OF 2015)” would be the last of 2015 but… it is hard to keep a writer...

An Unexpected Conversation Over Breakfast August 26, 2015.  It was early in the morning California time – late afternoon in Russia.  I was going through my overnight messages in the large...

I’m thrilled to let you know that my surgeon has agreed to give me another Lung Radiofrequency Ablation (RFA) surgery on August 27th! The second half of this post focusing on the Postive Power...

I’ve been surrounded by Cancer my entire life, one of my earliest memories is hearing that my Grandpa Herb had a colostomy bag from his rectal cancer surgery.  As a probably...

Earlier this month I felt like the luckiest guy in the world.  The Colondar 2.0 colorectal cancer (CRC) patient retreat, interview and photoshoot was quite simply one of the absolutely most...

If you have hit the link to the “Favorite Cancer Books” page in my blog, you know I am a big fan of both of Tami Boehmer’s books: “From Incurable to...

Here’s some exciting positive news to share from the personal side of cancer! I have been selected to be one of the 12 “models” for the 2016 Colondar 2.0 annual magazine (to...

Although it was a long way to fly for a 3 day trip, Barcelona was a WONDERFUL trip on many different levels! My talk went really well – I got a...