AdventuresInLivingTerminallyOptimistic

You don’t know how much you will miss something until it is taken away from you.  Two weeks ago something was taken away from me: my ability to walk without assistance....

Balancing the need to conserve energy and it being unfair for the entire Facebook & Twitter social media Universes to know the latest on me while you don’t, I am simply...

What a long strange trip the past month and a half has been as I started my first immunotherapy treatment (atezolizumab + FOLFIRI + bevacizumab), as I reported in my earlier...

So this is what GOING OFF-ROADING – EXPERIMENTAL TREATMENT STRATEGY STYLE feels like… What an interesting couple of weeks I have had since my last medical update (link above)!  “Interesting” is a...

Yes, it is time for another medical update! It is funny… the original intent of this blog (before I published the first post) was for it to be a vehicle to...

This week is one of those weeks where a bunch of important things are happening, across a wide range of my life!  I was trying to think of how to organize...

I went and got a haircut this week.  No that was not meant to be the single most boring start to a blog post in the history of cancer blogging –...

I wanted to give an update – both in how things have been going and also what my next plans are (hint: I have to arrive at the hospital for a...

I wanted to write a quick post update, this one to report on how my “Selective Internal Radiation Therapy (Y90-SIRT)” procedure done on the right lobe of my liver went yesterday. We won’t...

Well the day is finally just about here!  After a longer than wished for wait over the course of May, tomorrow I go in for my first liver-focused therapy – my...

What a week I had last week!  Taken overall it was a GREAT week.  It was extremely hectic and not without some blemishes towards the end, but overall… it was a...

“Ironic” – as shown in the above pictured definition of “Ironic” from the Urban Dictionary – is a word that is often misused in contemporary life but when it comes to...

A brief update… and an explanation why I have been slow to write update posts recently… My disease has really taken off into a much more aggressive form with a significant...

There is something deeply visceral about your brain… It is the center of thought… It is the center of your being… it is the center of who you are… All of...

Both psychologically and practically it is interesting how a cancer patient’s attitude and approach to chemotherapy changes over the course of a “Cancer Career”.  That is a phrase that just popped...

Well… a blog post I certainly don’t want to write and I did not plan on writing… I was told to never bury the lead of a story – so here...

As readers of this blog know, physically I have been going through a rough patch the past 6 weeks or so.  Thankfully, something that is now changing! The sudden ramp up...

Just a short IMMUNOTHERAPY CLINICAL TRIAL update post today- The phone call just came in last night: The Clinical Trial Countdown Clock has officially started! As a reminder, here is the...

An incredibly intense series of events have been happening to me medically over the past month – life changing events for both me and my family.  Things were happening so quickly,...

In the immortal words of our most recent Nobel Prize Laureate Bob Dylan , the times they are a changin’…  This morning I will be having my final Full Fury (FOLFIRI)...

Pain. I’ve been very fortunate over the past over 4 ½ years since my cancer diagnosis.  I had some pain immediately before my diagnosis from my primary tumor but ever since...

As long time readers of my blog know – I have been in a quandary since I was diagnosed with (presumably cured) Stage 1 melanoma in January 2015.  That diagnosis, even...

Photo graphic courtesy of STAT News, Photo by James Cuevas I hear questions all the time for an update on my personalized “neoantigen” immunotherapy research project – a project I first wrote about...

Hope – it is such a simple, yet complex word. A short word that is easy to explain on the base-level but it can be incredibly complex to comprehend all the...

I had my post-summer-chemo-break CT-scan on Wednesday.  Regrets & worry started to try to enter my consciousness.  They were unwelcome invaders and to be honest, rarely seen or felt in my...

The CT-guided lung biopsy mentioned in my previous post was completed today at the University of Michigan without complications! It is intended to provide both DNA and RNA sequencing data for my personalized...

What do you do when two fully qualified major medical centers give you opposite medical advice?  What do you do when the decision impacts your personal colorectal cancer (CRC) immunotherapy research...

I just wanted to give a brief personal medical update and my related summer plans! With the exception of my diagnosis summer (2012) when potentially curative chemo was given ASAP, I...

A very brief medical update! Being hit by a FOLFIRI chemo infusion today only 48 hours after running the team triathlon truly feels bizarre… But that is one of the crazy...

As a mirror to my post in February called “One Little Number”, I wanted to write a very short post tonight called “The (Positive) Power of One Little Number”  It shows...

It’s hard to believe that it has already been almost 12 months since I last ran a UCSD-Moores Cancer Center Team Triathlon, which I wrote about last year in my post...

To begin with, my CT scan was good – my tumors are shrinking from the FOLFIRI + Avastin chemotherapy I am currently taking!  I have had a 4 week break –...

As I announced in my most recent medical update post “It’s a Marathon Not a Sprint”, this week I started the chemotherapy cocktail FOLFIRI  + the angiogenesis inhibitor Avastin (bevacizumab). I...

I don’t normally write blog posts so close together but I know everyone has been curious what my new treatment plan would be after I announced 3 weeks ago that I...

Medically it has been an eventful 7 days – I had not one but two different very important CT-scans: one in the ER, the other scheduled to check the success of...

Just a quick update that my radiofrequency ablation (RFA) lung surgery #2 this morning was a success!  It looks like another two lung tumors were successfully fried to a crisp – one...

I’m thrilled to let you know that my surgeon has agreed to give me another Lung Radiofrequency Ablation (RFA) surgery on August 27th! The second half of this post focusing on the Postive Power...

Time for a medical update – I had a CT-scan on Monday to see how things looked and I got the results back tonight.  Overall pretty good news- Just the facts man...

My lung radiofrequency ablation surgery went very smoothly today – easy peasy! The excellent interventional radiology surgeon blasted the largest tumor & also retrieved tumor tissue for genetics. He “thinks” he got...

Just a brief update that my lung radiofrequency ablation (RFA) procedure is happening tomorrow (Thursday) at noon!  I posted the details describing the procedure previously here.  Assuming there are no complications like...

At the end of my previous “A VERY GOOD DAY ON THE BATTLE FRONT! (CT SCAN RESULTS ET AL)” post I mentioned that with my good CT scan results:  “I’m fighting...

Scanxiety noun : the tension which builds, particularly among those who have or have had cancer, as they move towards their regular checkup scan. All cancer patients approach scan days differently. ...

After coasting yesterday and letting Tami Boehmer do all the writing, I figured it was time for me to write a real post since it has been a while.  I’ve already...

Just a quick update on my anti-EGFR Therapy… I just got back from my Oncologist  appt.  He was downright giddy happy/excited to see the scope of my EGFR rash! 🙂 Oncology...

I had a (relatively 🙂 ) quiet week, so I wanted to take the opportunity to  write another “Common Question Answered” post to try to explain in easily understood language the...

It has been an interesting month to say the least… on top of the complicated medical appointment logistics of dealing with simultaneous melanoma + CRC and the melanoma surgery & CRC...

It never ceases to amaze me how life is such a constant fluctuating mixture of highs & lows.  Maybe I am just hyper-observant now compared to the average person but as...