AdventuresInLivingTerminallyOptimistic

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I feel so extraordinary, Something’s got a hold on me I get this feeling I’m in motion, A sudden sense of liberty… I used to think that the day would never come, I’d see delight in the shade of the morning sun “In many ways 2015 was the most incredible year of my life.  Over 3 years into a currently incurable Stage IV colon cancer diagnosis, that phrase says a lot.” That… Read More

A great aspect of my current life is that I get to meet some incredible people doing incredible things.  Doing things that they never would have done without cancer entering their life – done both in spite of cancer and because of it. Many of these people are incredible in quiet and unassuming ways.  Others make big impacts in more public sorts of way.  Lee Silverstein is in the latter group. I… Read More

It’s hard to believe that it has already been almost 12 months since I last ran a UCSD-Moores Cancer Center Team Triathlon, which I wrote about last year in my post THE ULTIMATE TEAM SPORT: “A big part of being a cancer patient is trying your hardest to not give up in the face of adversity.  In that way it is very similar to endurance sports.  This is what makes the Moores… Read More

In conjunction with the start of Colorectal Cancer (CRC) awareness month, I’m excited to announce that the 2016 Colondar 2.0 annual resource magazine was released today! I LOVE the page from my section pictured above (all Colondar 2.0 photos taken by the incredible Mark McCarty & courtesy of The Colon Club!).  Note the caption they chose to use, I think they captured my mindset and philosophy perfectly. “Incurable… For now… The lung spots… Read More

Although our health system is far from perfect, we often forget there are BILLIONS of people in the world without basic access to the latest oncology news and knowledge. With >50 MILLION  social media hits, my oncology researcher colleague Zhizhong “ZZ” Li is changing that fact in China. I wrote previously that through his social media networks, ZZ brought my Stage IV announcement letter originally meant for family & friends to >1… Read More

There is no new medical news to report – which in the case of someone with Stage IV cancer is a good thing!  I’m continuing my weekly Erbitux infusions (with appropriate Mad scientist amendments 😉 ), the side effects are manageable,  my new runathon for the Colon Club is off to a great start and I continue to feel great!  The next CT scan to confirm things are continuing to go well is… Read More

Scanxiety noun : the tension which builds, particularly among those who have or have had cancer, as they move towards their regular checkup scan. All cancer patients approach scan days differently.  I have friends that get so nervous approaching a scan they literally have to take anti-nausea medicine. On the opposite side of the spectrum, I have friends that manage to stay quite sanguine as their scans approach.  Still others are simply… Read More

After coasting yesterday and letting Tami Boehmer do all the writing, I figured it was time for me to write a real post since it has been a while.  I’ve already written about the science behind my anti-EGFR therapy here.  I think what I wrote is already a fascinating scientific story and hopefully it becomes even more so in the future after I see how successful my current experiment has been… 😉… Read More

A DVR reminder of a film I have mentioned before: The incredible new Ken Burns “Cancer – the Emperor of All Maladies” PBS mini-series will air next week on Mon-Wed (4/30-5/1), I highly recommend to set your DVR’s and tell Family & friends, especially those impacted by cancer! I had the privilege of attending an advance screening a few weeks ago.  They only showed a 45 minute excerpt of the 3 episode… Read More

I had a (relatively 🙂 ) quiet week, so I wanted to take the opportunity to  write another “Common Question Answered” post to try to explain in easily understood language the new treatment I recently started for my CRC (an anti-EGFR therapeutic antibody called cetuximab).  I’ve found that there is a real curiosity among both fellow patients as well as the general public to understand why certain drugs are used for cancer therapy,… Read More

I plan to cover a range of topics in this blog including treatment/medical updates, exciting scientific progress/breakthroughs (explained for the lay reader 🙂 ) and also answering some common “curiosity questions” that I suspect many people have — based upon the number of times I have been asked already.  Cancer is very much a six “four-letter” word – so I know many people are uncomfortable asking certain questions, even if they are… Read More

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