AdventuresInLivingTerminallyOptimistic

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I feel so extraordinary, Something’s got a hold on me I get this feeling I’m in motion, A sudden sense of liberty… I used to think that the day would never come, I’d see delight in the shade of the morning sun “In many ways 2015 was the most incredible year of my life.  Over 3 years into a currently incurable Stage IV colon cancer diagnosis, that phrase says a lot.” That… Read More

SCHEDULED FOR FRIDAY (12/23) – NBC NATIONAL NIGHTLY NEWS with Lester Holt!  NBC Nightly News recently interviewed both I and a patient/caregiver couple helped by the COLONTOWN CLINIC, a project supported by the Colon Cancer Alliance.  The interview and story will air this ????? night. As many of you know, I am proud to work on numerous patient Clinical Trial advocacy efforts with a number of advocacy organizations to try to empower &… Read More

When you are first diagnosed with cancer, many things stream through your mind at light speed.  Being there for your kids, impending major changes to lifestyle and life plans, and right up there in that top tier of thoughts are worries about your employment and workplace. Before I drill down to my specifics, these are HUGE concerns impacting Stage IV patients overall, adding yet additional layers of stress on top of their… Read More

This is a lengthy science post I have been debating whether to write for over a year.  Many fellow patients have been asking me to write it but I have hesitated.  Why debated? Why hesitated? At the root of ANY science post I write, I have to believe in my heart that the possibility of harm is vastly outweighed by the possibility of good that could come about by me sharing my… Read More

Photo graphic courtesy of STAT News, Photo by James Cuevas I hear questions all the time for an update on my personalized “neoantigen” immunotherapy research project – a project I first wrote about in blog format last February. If you want to know a broader view (both historical background and current status) about our quest to cure both my own MSS-CRC & efforts to lead the way for fellow MSS colorectal cancer patients as… Read More

In many ways 2015 was the most incredible year of my life. Over 3 years into a currently incurable Stage IV colon cancer diagnosis, that phrase says a lot.  Of course, the most incredible moments in my life were my kids’ births and my marriage day.  But in terms of almost continuous meaningful things happening….. as a year, 2015 took the cake. I had ZERO guess that any of this was coming… Read More

As I announced in my most recent medical update post “It’s a Marathon Not a Sprint”, this week I started the chemotherapy cocktail FOLFIRI  + the angiogenesis inhibitor Avastin (bevacizumab). I wanted to update you on how the return to chemo went. I won’t sugarcoat this decision nor the experience. I believe my writing, fellow survivors & you all deserve brutal honesty – but it is, as always, Hope filled.  Hope is… Read More

The title to this post is “Adventures in Living Terminally Optimistic” in Chinese. It should also have a subtitle “First, an Introduction… Part 2”. Aka “Oops”. Seeing my blog title in Chinese still gives me the chills!  I had mentioned previously  that I had written a preface for a new Chinese mass market cancer book written by my colleague Zhizhong Li called “Cancer Insights”.  His book contains a mixture of scientific information… Read More

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