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What makes a hero? There is some debate in the cancer community… is it right to refer to cancer patients/survivors as heroes? A burning building/emergency responder argument is sometimes used.  If a person wakes up in a burning house and struggles their hardest to try to find a way out safely – that person may be a survivor but he or she is not necessarily a hero.  They found themselves in danger… Read More

Wow. What an incredible week it has been… I am tearing up now just thinking about it as I fly home from New York City (NYC) to my home and my family in San Diego. A lot of people have been wondering how I have been doing since the last medical update (In Case of Emergency Break Glass).  It is hard to believe that it has been almost a month since that… Read More

March 1st is the beginning of Colorectal Cancer Awareness month. I chose to commemorate it in this way – in the hopes that these pictures will bring awareness of the EXPLOSION in early-onset CRC cases. If you have GI symptoms with more common causes ruled out by your PCP – NO MATTER WHAT YOUR AGE – demand a colonoscopy! If I had been faster, I might not be Stage IV right now…. Read More

I feel so extraordinary, Something’s got a hold on me I get this feeling I’m in motion, A sudden sense of liberty… I used to think that the day would never come, I’d see delight in the shade of the morning sun “In many ways 2015 was the most incredible year of my life.  Over 3 years into a currently incurable Stage IV colon cancer diagnosis, that phrase says a lot.” That… Read More

When you are first diagnosed with cancer, many things stream through your mind at light speed.  Being there for your kids, impending major changes to lifestyle and life plans, and right up there in that top tier of thoughts are worries about your employment and workplace. Before I drill down to my specifics, these are HUGE concerns impacting Stage IV patients overall, adding yet additional layers of stress on top of their… Read More

As long time readers of my blog know – I have been in a quandary since I was diagnosed with (presumably cured) Stage 1 melanoma in January 2015.  That diagnosis, even though presumably cured by simple day surgery, with zero signs of recurrence ever since e.g. by monitoring with blood liquid biopsy, effectively blocked me from most colorectal cancer (CRC) clinical trials. Without clinical trials there is statistically an essentially 100% chance… Read More

Photo graphic courtesy of STAT News, Photo by James Cuevas I hear questions all the time for an update on my personalized “neoantigen” immunotherapy research project – a project I first wrote about in blog format last February. If you want to know a broader view (both historical background and current status) about our quest to cure both my own MSS-CRC & efforts to lead the way for fellow MSS colorectal cancer patients as… Read More

What do you do when two fully qualified major medical centers give you opposite medical advice?  What do you do when the decision impacts your personal colorectal cancer (CRC) immunotherapy research and shot at a cure?  Today, I want to provide a medical update related to my personalized immunotherapy research project but while doing that, also discuss a major issue which impacts many cancer patients, myself included, conflicting medical advice. ‘Ask your… Read More

You know those moments in life when something so unexpected, so exhilarating & so meaningful (all wrapped up in one) happens – that each time you think of it you get the chills all over again? I had one of those moments a few days ago in the basement of the Congressional Rayburn House Office Building.  It was such a special meeting, even Katie Couric, a big CRC and cancer advocate, tweeted about… Read More

To begin with, my CT scan was good – my tumors are shrinking from the FOLFIRI + Avastin chemotherapy I am currently taking!  I have had a 4 week break – the side effects go away after 3 weeks, so I even recently snuck in a 10k run! 🙂 I will be continuing to take chemo biweekly for now.  But that is a battle win (which I am very happy for!!) –… Read More

My friend Lindsey Motley died of colorectal cancer (CRC) today.  She was 29 years old. She was very special in many ways to an incredibly large number of people – including to me. Lindsey was many things…  Too many things to list to do justice.  I think most of all she was a loving wife and mother to a young daughter. At the end of the day what matters more than that?… Read More

In many ways 2015 was the most incredible year of my life. Over 3 years into a currently incurable Stage IV colon cancer diagnosis, that phrase says a lot.  Of course, the most incredible moments in my life were my kids’ births and my marriage day.  But in terms of almost continuous meaningful things happening….. as a year, 2015 took the cake. I had ZERO guess that any of this was coming… Read More

As I announced in my most recent medical update post “It’s a Marathon Not a Sprint”, this week I started the chemotherapy cocktail FOLFIRI  + the angiogenesis inhibitor Avastin (bevacizumab). I wanted to update you on how the return to chemo went. I won’t sugarcoat this decision nor the experience. I believe my writing, fellow survivors & you all deserve brutal honesty – but it is, as always, Hope filled.  Hope is… Read More

Just a quick update on run sponsorships for the non-profit CRC charity for The Colon Club : This morning I received a VERY generous pledge match offer: ALL RUNNING PLEDGES WILL BE DOLLAR-MATCHED up to a $2500 cap! WOW! So a quick & easy way to double-your pledge impact & the impact of your blog link shares to others! Please see the link below for details on my running fundraiser for my CRC… Read More

Earlier this month I felt like the luckiest guy in the world.  The Colondar 2.0 colorectal cancer (CRC) patient retreat, interview and photoshoot was quite simply one of the absolutely most amazing experiences I have ever had.  It was truly a life-changing event. Inspiring, invigorating, emotional, empowering… I was so blessed to be able to participate in this…  You are going to read about and see 11 other AMAZING SURVIVORS when the… Read More

There have been a series of strange coincidences & twists of fate during my cancer journey but one that happened last week ranks up there with one of the most amazing… In the past week a scientific dream I’ve had in regard to my cancer became a reality – by the most unexpected route possible. For a scientist experiencing an extreme low last week with being excluded from many clinical trials, this was… Read More

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