AdventuresInLivingTerminallyOptimistic

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As long time readers of my blog know – I have been in a quandary since I was diagnosed with (presumably cured) Stage 1 melanoma in January 2015.  That diagnosis, even though presumably cured by simple day surgery, with zero signs of recurrence ever since e.g. by monitoring with blood liquid biopsy, effectively blocked me from most colorectal cancer (CRC) clinical trials. Without clinical trials there is statistically an essentially 100% chance… Read More

I just wanted to give a brief personal medical update and my related summer plans! With the exception of my diagnosis summer (2012) when potentially curative chemo was given ASAP, I have always had the “goal” (when medically possible) to take summers off from treatment.  Even though I am terminally optimistic, I am also realistic… part of Stage IV life is thinking through the memories you are generating for your kids –… Read More

To begin with, my CT scan was good – my tumors are shrinking from the FOLFIRI + Avastin chemotherapy I am currently taking!  I have had a 4 week break – the side effects go away after 3 weeks, so I even recently snuck in a 10k run! 🙂 I will be continuing to take chemo biweekly for now.  But that is a battle win (which I am very happy for!!) –… Read More

In many ways 2015 was the most incredible year of my life. Over 3 years into a currently incurable Stage IV colon cancer diagnosis, that phrase says a lot.  Of course, the most incredible moments in my life were my kids’ births and my marriage day.  But in terms of almost continuous meaningful things happening….. as a year, 2015 took the cake. I had ZERO guess that any of this was coming… Read More

Scanxiety noun : the tension which builds, particularly among those who have or have had cancer, as they move towards their regular checkup scan. All cancer patients approach scan days differently.  I have friends that get so nervous approaching a scan they literally have to take anti-nausea medicine. On the opposite side of the spectrum, I have friends that manage to stay quite sanguine as their scans approach.  Still others are simply… Read More

There have been a series of strange coincidences & twists of fate during my cancer journey but one that happened last week ranks up there with one of the most amazing… In the past week a scientific dream I’ve had in regard to my cancer became a reality – by the most unexpected route possible. For a scientist experiencing an extreme low last week with being excluded from many clinical trials, this was… Read More

It has been an interesting month to say the least… on top of the complicated medical appointment logistics of dealing with simultaneous melanoma + CRC and the melanoma surgery & CRC scans themselves, were the scientific talk 3-day (!)  trip to Barcelona, the subsequent (but unrelated) beginning of our major house remodel project (to borrow a phrase from economics – schöpferische Zerstörung i.e. the cringe-worthy “creative destruction” of our home of >10 years… Read More

It never ceases to amaze me how life is such a constant fluctuating mixture of highs & lows.  Maybe I am just hyper-observant now compared to the average person but as I began to write an update (I know many people are curious about the Melanoma) – I was astonished at the incredible range of “good” and “bad” events that have taken place in my life in just the past week! So… Read More

Just a brief update that I really wasn’t expecting to give, until a phone call arrived a short while ago. I was diagnosed with melanoma today – so far it looks like it is only localized but please pray/send me positive vibes that the sentinel lymph node biopsy turns out good (i.e. no spread beyond the primary small mole that was diagnosed). Statistically, since the melanoma spot was small/thin it looks like… Read More

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